We Know you care because
Love is not rare
Together, we believe we can continue to demonstrate the true spirit of โLove is Not Rareโ and that love shows no discrimination.
About us
We live with a hope
At RDSS, we believe in fostering hope for individuals with rare diseases, envisioning a future where they can lead fulfilling lives. While waiting for advancements, we are dedicated to improving their quality of life. Our collaborations with stakeholders aim to ensure individuals with rare diseases receive the necessary attention within our ecosystem.
Join us in amplifying their voices and making a difference! Be a beacon of hope.
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Empower Lives
Every small amount can make a significant impact in the lives of those with rare disorders. Your generous donation today can create a world of difference for someone battling a rare condition, offering them hope, support, and a brighter tomorrow. By contributing to the Rare Disorders Society Singapore (RDSS), you become an essential part of a compassionate community working tirelessly to improve the lives of individuals with rare disorders and their families. Your donation will enable RDSS to provide emotional support, and educational resources, empowering these brave individuals to overcome challenges and thrive.ย Donate now and be a beacon of hope for the rare disorder community. Together, we can create a world where every person with a rare disorder is supported and cherished.
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Informational Support
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Psychosocial Support
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Financial Support
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Testimonial
About Our Work
Meet Patricia & Kenneth
RDSS is a family-style non-profit organisation. We build RDSS to serves as a community, another family, where people living with rare disorders, and their family can come together for companionship and support. RDSS offers a platform for caregivers to share their experiences and network with each other.
Meet Jasmine & Sarah
RDSS is more than just a place I have received support and assistance from, but also one that empowered me to become a better caregiver. Each of us is like a family to one another, because we can understand the challenges and also the joy that come with every victory that our child has battled. Love is not Rare and we are not alone in this journey.
Meet Amanda & Amelia
As a sibling, there are many things we have to learn beyond our age. RDSS siblings programme showed me that there are many other siblings out there who is facing the same struggles as me and its been an honour to journey alongside with them. So now it's my turn to contribute back and RDSS has provided me a platform to do so.
Meet Francesca
Thank you RDSS for letting me have my art therapy with Art for Good. I like teacher Amanda very much and I hope to continue my lessons with her. I never know I can draw so well and I am so happy that I can express myself through my drawing. My daddy and mummy are very proud of me! When I grow up, I want to become an artist!
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Latest News
Some of the Recent Stories
RDSS Movie Outing with CEVA
On a joyful day of bonding and laughter, RDSS, in collaboration with CEVA Logistics, organized a private movie screening of
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Building Bridges: Global Efforts in
On July 21, the Rare Disorders Society (Singapore) participated in the 2024 Sixth Rare Disease Symposium on Collaboration and Communicationsย
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Legacy of Resilience: Honoring Our
In observance of Bereaved Parents Month, we hosted the "Legacy of Resilience" event, uniting nine families to honor and remember
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Father’s Day Networking Session
On Father's Day, a group of 25 dedicated fathers came together for a special networking session. As we got to
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Siblings Event – Pals at
On 16 June 2024, the RDSS Youth Division Executive Committee held a younger siblings event called Pals at Play. The
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Training for Caregivers
MOU Signing Ceremony 23th March 2024 was a significant milestone as we took a stride towards providing training not only
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HOPE at Singapore Zoo
HOPE at Singapore Zoo We're overjoyed to share that ๐ฆ๐ถ๐ป๐ด๐ฎ๐ฝ๐ผ๐ฟ๐ฒ ๐ญ๐ผ๐ผ'๐ ๐๐ฟ๐ฎ๐ด๐ถ๐น๐ฒ ๐๐ผ๐ฟ๐ฒ๐๐ is now home to a new addition
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Carry Hope 2024 – Love
On February 25, 2024, the Rare Disorders Society (Singapore) organized the much-anticipated Carry Hope 2024 Walk & Run event. This
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XLH Patient Connect 2023
If you are XLH patients or someone living with XLH, please scan the QR code to register for this event.
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Carry Hope 2024 Registration
Donate to our main fundraising campaign!Raising $700,000 in 7 weeks with our Fundraising 777 Virtual Challenge. Thank you for the
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Singapore Silent Hero Award 2023
On 28th Sept 2023, our co-founder, Kenneth Mah, was conferred the Singapore Silent Hero 2023. The award was presented to
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RDSS is an IPC Charity
RDSS has successfully received our IPC status in December 2022. Donors that made a donations to our Charity will be
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Celebrate Life 2022
RDSS hosted our first physical event since Covid pandemic started in 2020. Our beneficiaries and their families enjoyed a joyful
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Carry Hope 2023 7.7KM Walk-A-Jog
Carry Hope 2023 7.7KMย Walk-A-Jog Challenge Guest of Honour: Mr Ong Ye Kung Minister For Health of Singapore See you on
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Citrix Systems Donated To RDSS
RDSS is pleased to announce Citrix Systems has made a generous donations to support our home-based therapy scheme. Up to
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Children’s Day Special 2020
๐ฆ๐ฝ๐ฒ๐ฐ๐ถ๐ฎ๐น ๐๐ต๐ถ๐น๐ฑ - ๐ฎ ๐๐ฒ๐น๐ณ-๐๐ต๐ผ๐ ๐ ๐๐๐ถ๐ฐ ๐ฉ๐ถ๐ฑ๐ฒ๐ผ ๐ฏ๐ ๐ฅ๐๐ฆ๐ฆ ๐ณ๐ฎ๐บ๐ถ๐น๐ถ๐ฒ๐ Covid-19 restrictions on video shoots did not stop us from
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Carry Hope 2021
On 29 February 2020, RDSS launch a new campaign called Carry Hope Run. The objectives of this campaign are to
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Boehringer Ingelheim Donated To RDSS
Pharmaceutical group Boehringer Ingelheim (BI) has donated its second tranche of Jobs Support Scheme (JSS) payouts to seven charities, with
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Coping with Covid-19
RDSS organised our first FB live to find out how our beneficiaries are coping with the Covid pandemic. With COVID-19