Cindy’s Story: Choosing Courage Every Day

Cindy’s journey with a rare disorder began when she was just three years old. A sudden loss of consciousness leading to a fall off from the swing led her family to seek answers, and after a series of tests, she was diagnosed with Morquio Syndrome (MPS IV) — a rare genetic condition that affects bone development, mobility, and physical strength.

Growing up, Cindy was cheerful and determined, often adapting to challenges with quiet resilience. Yet, as the years went by, she began to notice subtle changes — the moments when she couldn’t keep up with friends at school or needed more help with daily tasks. These transitions, though gradual, were difficult to accept.

Today, at 23, Cindy requires greater physical support, relying on her mother for daily activities like showering, dressing, and getting ready for work. Despite these challenges, her optimism shines through. Cindy works remotely, remains active in her community, and continues to inspire those around her with her unwavering spirit.

“It’s not easy,” she shares softly, “but I’ve learned that strength isn’t about doing everything on your own — it’s about accepting help, believing in yourself, and finding peace in the small things.”

Her mother has been her greatest source of strength, always present with patience and love. Together, they’ve built a rhythm of care grounded in mutual trust and faith. Cindy also finds comfort in the RDSS community — a place where she feels seen, understood, and supported. Attending Carry Hope 2025 Forum reminded her that she is never alone and that others are walking similar journeys with hope and courage.

Cindy’s message to families and the public is a powerful one:
💜 Disability is not the end of the world.
💜 The only limits are the ones we set.
💜 Real inclusion begins with open hearts.

Her story is a beautiful reminder that courage comes in many forms — sometimes it’s found not in grand gestures, but in the quiet strength to keep going, one hopeful day at a time.