Rare Disorders Society (Singapore), or RDSS, began as a ground-up movement started by parents of children living with Lysosomal Storage Disorders (LSD). What started as a small parent network grew into a formal Society in 2011, and later became a registered Charity in 2013 — built on one belief: every rare disease patient deserves to be seen, supported, and given a fair chance at life.

Today, RDSS remains the only organisation in Singapore dedicated solely to supporting children and adults with rare diseases, across all conditions — including undiagnosed cases. Unlike charities anchored to a single diagnosis or broader genetic groups, RDSS walks with every family navigating the challenges of living rare.

Our mission is simple but urgent:
to raise awareness, connect families to timely support, and improve the overall quality of life for those living with rare diseases.

As awareness grows across healthcare partners, schools, companies, and the wider community, we strive to shorten the time it takes for families to receive intervention, financial relief, and psychosocial support — because early help can change the trajectory of a life.

RDSS continues to stand alongside patients and caregivers with financial assistance schemes, emotional support, and community programmes that build resilience, inclusion, and hope.

Our Charity UEN is T11SS0113L. You can find us on the Charity Portal (for best viewing, use desktop mode).