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Love Is Not Rare

Rare Disease Day 2013

This year, RDSS and Club Rainbow got together to celebrate Rare Disease Day 2013 at Amara Hotel. The event was reported in local newspaper, Lianhe Zaobao and Straits Time. We...

Christmas in Singapore CD 2012

  A charity Christmas album featuring Singaporean independent musicians performing Christmas songs for charity was released to support RDSS. Over $20,000 was raised during Christmas period. RDSS would like to...

RDSS Support Group BBQ 2012

  In March 2012, RDSS had the first BBQ gathering with 10 families attending. It was a very good support group sharing session and everyone had fun including the children....

Rare Disease Day 2012

Through this event, we will achieve our objective in creating awareness and public advocacy of rare diseases. This event will also be a platform where the public has a chance...

SingHealth Inspirational Patient and Caregiver Award 2012

Kenneth Mah, founder of RDSS, was one of the recipients for SingHealth Inspiration Caregiver Award 2012. Despite the challenges faced by them, Kenneth and Patricia founded RDSS to support other...

Participation in Speech Therapy Fair 2011

RDSS participated during Speech Therapy Fair at MICA building. During the fair, RDSS was given the opportunity to meet up with our Health Minister, Mr. Gan Kim Yong. Mr Gan...

20th International MPS Committee Meeting 2011

  RDSS attended this meeting to network with global NGOs who are support patients suffering from rare disorders. The meeting enabled us to gain knowledge on the current treatment and...

RDSS Piano Recital Charity Fundraiser 2011

  RDSS organised the very first fund raising event at KKH. Over $20,000 was raised through this event and proceeds went to KKH Health Endowment Fund. Among the performers was...